Conditions of Use and Privacy Statement

Conditions of Use and Privacy Statement for the EURACAN website. 

EURACAN is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit The content on this website represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

The STARTER Project Web page is part of the project ‘944607/STARTER’, which has received funding from the European Union’s Health Programme (2014-2020). The content of this Website section represents the views of the author and his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

This website is hosted by OVH – OVH Groupe SAS is a company registered with the Lille company registry under the number 537 407 926 sise 2, rue Kellermann, 59100 Roubaix. –  +33 9 72 10 10 07


Intellectual property rights

© Copyright 2020   |   ERN EURACAN  |   All Rights Reserved

The content and texts, which include press releases, videos, images and animations that appear or are available on the site, are protected by intellectual property rights and are the exclusive property of EURACAN, unless otherwise mentioned. As such, you agree not to copy, translate, reproduce, sell, publish, exploit and distribute the contents of the site protected by intellectual property law, without prior written permission of EURACAN.

The brands and logos present on the website are, unless otherwise mentioned, the property of EURACAN. Unless prior written authorization is given, the Internet user is forbidden to use them.

However, EURACAN grants the Internet user the right to reproduce all or part of the content of the site, in one copy for backup copy or print. This right is granted for strictly personal, private and non-collective use.

The logo “European Reference Network” is registered as figurative trademark by the Commission. The EURACAN Network has the licence to use it under specific terms and conditions. Please contact EURACAN for more details.


Conditions of use and Privacy statement

EURACAN is committed to protecting your privacy and developing technology that gives you the most powerful and safe online experience in accordance with the Regulation EU 2016/679 of 27 April 2016 on the protection of natural persons with regard to the processing of personal data and on the free movement of such data (hereinafter General Data Protection Regulation). This Statement of conditions of use and Privacy applies to the EURACAN Web site and governs data collection and usage.

The EURACAN Web Site is comprised of various Web pages operated by EURACAN. The EURACAN Web Site is offered to you conditioned on your acceptance without modification of the terms, conditions, and notices contained herein. Your use of the EURACAN Web Site constitutes your agreement to all such terms, conditions, and notices.

EURACAN Web Site, Newsletter, and Social Media accounts are maintained by the EURACAN Transversal Task Force on Communication and Dissemination with the aim of keeping the public informed about the activities of the European Reference Network on Rare Adult Solid Cancers.

As a condition of your use of the EURACAN Web Site, you warrant to EURACAN that you will not use the EURACAN Web Site for any purpose that is unlawful or prohibited by these terms, conditions, and notices. You may not use the EURACAN Web Site in any manner which could damage, disable, overburden, or impair the EURACAN Web Site or interfere with any other party’s use and enjoyment of the EURACAN Web Site. You may not obtain or attempt to obtain any materials or information through any means not intentionally made available or provided for through the EURACAN Web Sites

EURACAN Web Site, Newsletter, and Social Media accounts may contain links to other Web Sites (“Linked Sites”). The Linked Sites are not under the control of EURACAN and EURACAN is not responsible for the contents of any Linked Site, including without limitation any link contained in a Linked Site, or any changes or updates to a Linked Site. EURACAN is not responsible for webcasting or any other form of transmission received from any Linked Site. EURACAN is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by EURACAN of the site or any association with its operators.

Every effort is made to keep the website up and running smoothly. However, EURACAN takes no responsibility and will not be liable for the website temporarily being unavailable due to technical issues beyond our control.

ERN-EURACAN makes no warranties or representations of any kind as to the content’s accuracy, currency or completeness. Neither the EURACAN, Members, Associated Partners, or party involved in creating, producing or delivering this document shall be liable for any damages, including without limitation, direct, incidental, consequential, indirect or punitive damages, arising out of access to, use of or inability to use this document, or any errors or omissions in the content thereof.


Who we are?

The European Reference Network on Rare solid Adult Cancers, EURACAN, is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. EURACAN is coordinated by the Centre Léon Bérard, France.


Which kind of information is collected and for which purposes?

EURACAN automatically collects information about your computer hardware and software, as your IP address, browser type, domain names, access times and referring Web site addresses. This information is used by EURACAN for the operation of the service, to maintain quality of the service, and to provide general statistics regarding use of the EURACAN Web site.

On the other hand, EURACAN may collect personally identifiable information (as name, telephone, e-mail…) for some specific purposes described below. The Centre Léon Bérard is responsible of the file storing this information The user may exercise the rights of access, rectification, cancellation or opposition by written request to the following e-mail address:

Processing of such data takes place at the Centre Léon Bérard in agreement with the General Data Protection Regulation, and with relevant national legislation.

Pursuant to the provisions of personal data protection regulations, it is informed that the personal data provided by the user will be processed only in connection with the purposes for which in each case they were provided.


EURACAN inventory of members and experts

As starting point for the mapping of clinical care services available at EU level for Rare adult solid cancers, an inventory of EURACAN members profiles was created including their area/s of expertise, diseases covered and numbers of patients involved, as well as their age range, and facilities for delivery of health provision covering both diagnosis and clinical care.

The inventory of EURACAN members and experts is based on the implementation of members, healthcare providers, departments and expert profiles, gathering the essential information for a) identifying gaps on services and expertise on the different fields across Europe and b) showing publicly useful information for patients and health professionals through the website.



EURACAN has a contact form, which activates your email software and allows you to send a comment or question to a general email address. When you send such a message, your personal data is collected only to the extent necessary to reply. If the team responsible for the mailbox is unable to answer your question, or your question has regards to another party, it might forward your email to another service within the Network.

If you have any questions about the processing of your email and related personal data, do not hesitate to include them in your message.

The collected personal data and all information related to the above mentioned consultation is stored on the email server of the EURACAN Coordinating office and potentially those who have been concerned in the correspondence in order to respond to your comment.



The EURACAN Newsletter aims to keep all the interested persons in the field of rare adult solid cancers updated with the latest news at the national or European level and main activities and results achieved by the network.

The EURACAN newsletter acts in accordance with the General Data Protection Regulation, offering the possibility to unsubscribe at any time through the unsubscribe button located in our newsletter.

The Newsletter is sent by the General Data Protection Regulation-compliant email platform MailChimp. Express details on transparency and choices as well as the data privacy regulations can be found at:

You may always unsubscribe from our newsletter at any time through the unsubscribe button located in our newsletter. EURACAN is both the controller and responsible for processing of any data regarding the newsletter.



EURACAN webinars program aims to facilitate the transfer of knowledge and expertise health professionals and patients to learn highly specialized knowledge without the need to travel and whenever they wish.

Webinars sessions will be recorded and made them public available through EURACAN website and social media channels. Accordingly by registering to the session the attendants understand and agree that the images shared and voices can be recorded and published at EURACAN website and/or social media channels



The EURACAN Web site uses “cookies” to help you personalize your online experience. A cookie is a text file that is placed on your hard disk by a Web page server. Cookies cannot be used to run programs or deliver viruses to your computer. Cookies are uniquely assigned to you, and can only be read by a web server in the domain that issued the cookie to you.


Embedded content from other websites

Publications on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.


Google products

EURACAN Web Site uses the following Google products: Google Analytics to analyse the site traffic. They are operated by Google Inc., 1600 Amphitheatre Parkway, Mountain View, CA 94043, USA. By using this website, the user agrees to the recording, processing and usage of data both automatically collected and input by the user (including the IP address) by Google, one of its representatives or a third-party provider. The terms of use for Google Maps can be found at the following link:

Express details on transparency and choices as well as the data privacy regulations can be found at the data privacy centre on


How EURACAN uses my personal information? How is my data protected?

EURACAN collects and uses your personal information to operate the EURACAN Web site and deliver the services you have requested, as listed above. EURACAN also uses your personally identifiable information to inform you of other products or services available from EURACAN and its affiliates. EURACAN may also contact you via surveys to conduct research about your opinion of current services or of potential new services that may be offered.

EURACAN does not sell, rent or provide its customer lists to any third parties. EURACAN may, from time to time, contact you on behalf of external business partners about a particular offering that may be of interest to you. In those cases, your unique personally identifiable information (e-mail, name, address, telephone number) is not transferred to the third party.

EURACAN does not use or disclose sensitive personal information, such as race, religion, or political affiliations, without your explicit consent.

EURACAN secures your personal information from unauthorized access, use or disclosure. EURACAN secures the personally identifiable information you provide on computer servers in a controlled, secure environment, protected from unauthorized access, use or disclosure. For security reasons the EURACAN Web Site uses the Secure Socket Layer (SSL) connection for the transfer of data.


For how long will my data be stored? What if I decide that my data should not be used anymore?

Your data will be storage in EURACAN until such time as the objectives have been met, which may be several decades from now. However, you can see, edit, or delete your personal information at any time. Website administrators can also see and edit that information.

You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

You have the right to be forgotten and removed completely from the contact database without the need of justification by contacting EURACAN at:


Changes to this Statement

EURACAN will occasionally update this Statement of Privacy to reflect company and customer feedback. EURACAN encourages you to periodically review this Statement to be informed of how EURACAN is protecting your information.


Contact Information

EURACAN welcomes your comments regarding this Statement of Privacy. If you believe that EURACAN has not adhered to this Statement, please contact EURACAN



General information

EURACAN Coordinator – Director of publication

Prof. Jean-Yves Blay
MD, PhD, Medical oncologist
Centre Léon Bérard, Lyon, France

Coordination center

Centre Léon Bérard
28 rue Laennec – 69373 Lyon cedex 08 



The main website ( was created by Feelingpeaky.

Feelingpeaky Ltd is a company registered in England & Wales.
Registered Company Number: 5579994 VAT
Registration Number: 832 873608

+44 20 8997 4700

The subsite was created by Interlude Santé.

Interlude Santé is a SARL registered in France.
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Registered Company Number (RCS) : Lyon 513 413 955

+33 4 72 24 56 18




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